Consensus conference

FEBRUARY 13, 2017 | THE ACADEMIA, SINGAPORE

The objective of the Consensus Conference is to define standard operating procedures (SOPs) for the design of ad-hoc translational projects comprising of diagnosis, intervention and collection of samples and clinical data. Subsequently, tools will be developed to run the studies network wide. These tools will comprise, but not limited to, selecting a vendor for the app and the smart phone, translating and validating questionnaires, harmonising samples shipment procedures, etc.

When the infrastructure and tools will be ready, translational-clinical projects will be defined and implemented network wide. These projects must have a translational valency (i.e. comprise of mechanistic and clinical studies) and must have the potential to be impactful and transformational for the communities involved.

UCAN-A will provide training to a local physician and a research nurse to implement SOP and collect data and samples. UCAN-A will also provide the necessary tools for pile interactions. A pilot phase will be run in Singapore (centre grant) on selected projects. These pilot projects may be mirrored by other partners in the network, with samples and data to be centrally collected in Singapore. Of note, this must by all means be considered as a cooperation and collaborative effort and therefore clinical data and samples will be available network wide for qualified studies.

We are pleased to have a vast representation of experts from Europe, USA, Japan, Thailand, Philippines, Malaysia, Australia, New Zealand and Singapore.

Private event: Participation is by invitation only.

Saturday, 11 February 2017

14:00 – 14:15 hrs Briefing by Prof Salvatore Albani
– Location: The Academia, SingHealth
14:15 – 18:30 hrs Roundtable discussion (Part I)
19:00 – 22:00 hrs Networking session & dinner

 

Sunday, 12 February 2017

14:00 – 18:00 hrs Roundtable discussion (Part II)
– Location: The Academia, SingHealth
19:00 – 22:00 hrs Opening Dinner

 

Monday, 13 February 2017

Location: The Academia, SingHealth

08:30 – 09:00 hrs Introduction & briefing by Prof Salvatore Albani
09:30 – 12:00 hrs Breakout session I – Group discussion
12:00 – 13:00 hrs Lunch
13:00 – 15:00 hrs Breakout session II – Group discussion
15:00 – 15:30 hrs Tea break
15:30 – 18:30 hrs Summary of discussion: Group presentations
19:00 – 22:00 hrs Closing Dinner

Name Designation Department/Organisation
Prof Salvatore Albani Director SingHealth Translational Immunology and Inflammation Centre
Dr Elizabeth Ang Consultant Division of Allergy, Immunology and Rheumatology, KTP-National University Children’s Medical Institute, NUHS
A/Prof Thaschawee Arkachaisri Head and Senior Consultant Dept. of Paediatric Subspecialties, Rheumatology & Immunology, KK Women’s and Children’s Hospital
Dr Christine Bernal Chief Section of Paediatric Rheumatology, Cardinal Santos Medical Centre
Prof Jonathan Carapetis Institute Director Telethon Kids Institute
A/Prof Derrick Chan Head & Senior Consultant Paediatrics Neurology
Department of Paediatrics, KKH
Dr Tassalapa Daengsuwan Chief Division of Allergy, Immunology and Paediatric Rheumatology, Queen Sirikit National Institute of Child Health
Dr Sytze de Roock Senior postdoc Laboratory for Translational Immunology/Peaditric Rheumatology, Wilhelmina Children’s Hospital
A/Prof Justine Ellis Group Leader Dept. of Genes, Environment & Complex Disease, Murdoch Children’s Research Institute, The Royal Children’s Hospital
Ms Hoh Sook Fun Rheumatology Resource Nurse Paediatric Subspec, Rheumatology & Immunology Service, KK Women’s and Children’s Hospital
Dr Andrea Low Head & Senior Consultant Dept. of Rheumatology and Immunology, SGH
Prof Alberto Martini Co-Founder Paediatric Rheumatology International Trials Organisation (PRINTO)
Dr Nikki Moreland Senior Lecturer & Heart Foundation Senior Research Fellow School of Medical Sciences and Maurice Wilkins Centre
University of Auckland
A/Prof Jane Munro Head of Rheumatology Unit Dept. of General Medicine, Murdoch Children’s Research Institute, The Royal Children’s Hospital
A/Prof Ng Kee Chong Chairman Division of Medicine, KK Women’s and Children’s Hospital
Prof Ooi Eng Eong Deputy Director Emerging Infectious Diseases Programme, Duke-NUS Medical School
Prof Berent Prakken Professor of Paediatric Immunology;
Co-Chair, UCAN-U;
Chair, ENTRAIN Department of Paediatric Immunology & Center for Molecular and Clinical Immunology (CMCI) and Laboratory for Translational Medicine, University Medical Centre, Utrecht
Dr Anna Ralph Senior Clinical Research Fellow Infectious Diseases and General Medicine, Royal Darwin Hospital
Dr Lakshmi Ramakrishna Centre Manager SingHealth Translational Immunology and Inflammation Centre
Ms Emily Robinson Research Co-ordinator University College London
Dr Nicolino Ruperto Co-Founder Paediatric Rheumatology International Trials Organisation (PRINTO)
Prof Laura Schanberg Co-Chief Division of Paediatric Rheumatology, Duke University School of Medicine
Dr Vicki Seyfert-Margolis CEO My Own Med, Inc
Dr Justin Tan Consultant Paediatric Subspec, Rheumatology & Immunology Service, KK Women’s and Children’s Hospital
Dr Tan Ngiap Chuan Director Department of Research, SingHealth Polyclinics
Dr Swee-Ping Tang Head Paediatric Rheumatology Unit, Hospital Selayang, Batu Caves
Dr Famke Van Wijk Associate Professor Department of Pediatric Immunology, University Medical Centre, Utrecht
Dr Soamarat Vilaiyuk Chief Division of Paediatric Rheumatology, Ramathibodi Hospital
Prof Lucy Wedderburn ProfessorPaediatric Rheumatology, University College London Paediatric Rheumatology, University College London
Dr Ken-ichi Yamaguchi Paediatric Clinical Program Director Immuno-Rheumatology Center, St. Luke’s International Hospital
Dr Yeo Joo Guan Associate Consultant Paediatric Subspec, Rheumatology & Immunology Service, KK Women’s and Children’s Hospital
Prof Rae S.M. Yeung Senior Scientist and Staff Rheumatologist The Hospital for Sick Children

I.  Clinical and Ethics network

  • Group Leader: A/Prof Ng Kee Chong
  • Topics:
    • Clinical research forms and questionnaires: translation and validation
    • National IRB issues
    • Standardisation of protocols
    • Governmental laws and regulation, including religious
    • Ethical issues
    • Training issues for local staff (including physicians)
    • Training opportunities for UCAN-A members
    • Quality control
    • Funding (philanthropy, industry, government)
    • Clinical research vs trials
    • Harmonisation with PRINTO initiatives
    • Relationship with CARRA and UCAN-U and other regional initiatives
    • Relationship with Industry
    • Patients voice representation

II.  Data and technologies networks

  • Group Leader: Dr Vicki Seyfert-Margolis
  • Topics:
    • Standardisation of protocols for sample collection, storage and shipment
    • Interfacing of UCAN-A data collection and storage platform with other regional platforms for interchange
    • Governmental laws and regulation, including religious
    • Ethical issues
    • Training issues for local staff (including physicians)
    • Training opportunities for UCAN-A members
    • Quality control
    • Funding (philanthropy, industry, government)
    • Harmonisation with PRES initiatives
    • Relationship with CARRA and UCAN-U and other regional initiatives
    • Relationship with Industry
    • Criteria for sharing of data and samples